Children with Special Health Care Needs Publications
Down Syndrome
Epilepsy
Spina Bifida
Other
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CA-LEND Leadership Project Video: Supporting the Communication Abilities of Individuals with Rett Syndrome
This video includes current research on communication development in individuals with Rett Syndrome, education on augmentative and alternative communication (AAC), parent-child input and examples on how to use AAC with a child with Rett Syndrome. A CA-LEND leadership project.
DVD Series: Stories From Our Hearts: Brief Messages From Families About Important Issues in Our Lives
Recent Peer-Reviewed Research Publications
Gardner, O., Haynes, K., Schweitzer, D., Johns, A., Magee, W., Urata, M., & Sanchez-Lara, P. Familial recurrence of 3MC Syndrome in consanguineous families: A clinical and molecular diagnostic approach with review of the literature. Cleft Palate-Craniofacial Journal, in press, 2016.
Johns, A., Lewin, S., & Im, D. Teasing in younger and older children with microtia before and after surgery. Journal of Plastic Surgery and Hand Surgery, in press, 2016.
Kaushansky, D., Dodson, C., Cox, J., McNeeley, M., & Iverson, E. Living a secret: Disclosure among adolescents and young adults with chronic illness. Journal of Chronic Illness, in press, 2016.
Betz, C., Nehring, W., & Lobo, M. (2015). Transition Needs of Parents of Adolescents and Emerging Adults With Special Health Care Needs and Disabilities. Journal Of Family Nursing, 21(3), 362-412. http://dx.doi.org/10.1177/1074840715595024
Cederbaum, J.A., Guerrero, E. G., Barman Adhikari, A., & Vincent, C.A. (2015). High-risk family environment and adolescent girls’ alcohol use. Journal of Nursing in AIDS Care, 26(3), 259-270. doi:10.1016/j.jana.2014.11.005
Fair, C., Cuttance, J., Sharma, N., Maslow, G., Wiener, L., Betz, C., Porter, J., McLaughlin, S., Gilleland-Marchak, J., Renwick, A., Naranjo, D., Jan, S., Javalkar, K., & Ferris, M. (2015). International and Interdisciplinary Identification of Health Care Transition Outcomes, JAMA Pediatrics, Published online November 30, 2015. doi:10.1001/jamapediatrics.2015.3168.
Deacy, A. D., & Morrison, C. M. (2015). Understanding and treatment of chronic abdominal pain among school nurses: A national survey. Clinical Practice in Pediatric Psychology. http://dx.doi.org.libproxy1.usc.edu/10.1037/cpp0000107
Nehring, W.N. Betz, C.L., & Lobo, M.L. (2015). Uncharted Territory: Systematic Review of Providers’ Roles, Understanding and Views Pertaining to Health Care Transition. Journal of Pediatric Nursing, 30 (5), 732-747, 2015. doi:10.1016/j.pedn.2015.05.030
Sargent, B., Huang, C. (2015). Commentary on “Behavior during tethered kicking in infants with periventricular brain injury.” Pediatric Physical Therapy. 27(4):413.
Betz, C., Ferris, M., Woodward, J., Okumura, M., Jan, S., & Wood, D. (2014). The Health Care Transition Research Consortium Health Care Transition Model: A Framework for Research and Practice. Journal of Pediatric Rehabilitation Medicine, 7, 3-15.
Taft, N., Muñoz, C., Lenihan, A., Gantan, J. (2014). Prevention of Pediatric Obesity: Recommendations, Priorities, and Tools for Change. ICAN: Infant, Child, & Adolescent Nutrition, 6, 18-23.
Vanderbilt, D., Schrager, S., Hamilton, A., Llanes, A., Seri, I., Chmait, R. (2014) Predictors of Two-Year Cognitive Performance after Laser Therapy for Twin-Twin Transfusion Syndrome. American Journal of Obstetrics and Gynecology, 211(4), 388-90.
